my dark day

For the many of us who have lost someone special, there are certain days of the year that make it hard to keep on moving forward, to keep on growing old. The deceased's birthday or the anniversary of the day he/she died is almost always harder for us than all other days in a given year. But since losing my older brother, the hardest day of the year for me has always been MY birthday. That's right, my own birthday. I still recognize my brother's birthday, the day of his diagnosis, and the day of his death. I light a Yahrtzeit candle. My family goes to the cemetery. We mark these events the same way everyone else does.

But the hardest day of the year, for me, is the day I turn yet another year older. Older than my big brother. From my perspective, he stopped aging at age 30. The day I turned 30, two and a half years after Dave passed away, I was a mess. But then I was okay. I was surrounded by good friends, who raised money for Brain Tumor Research. Well, I thought, I finally caught up to you big brother. Thirty's not so bad. 

But then I turned 31. I had officially outlived my older brother. I didn't do a single celebratory thing that day. I think I ate Taco Bell and went to bed early. I just didn't want to be around anyone else on my "dark day."

So last week, when I turned 35, I just felt awful. Turning another year older, I always feel awful. I'm used to it now. I can see it coming. And I do my usual ignoring of the inevitable, "what are we doing for your birthday" texts.  Because, let's face it: I'm now 35 and my big brother is 37 still 30. 

I know Dave would never want me to sit at home on this special day and wallow in my sadness. I don't do that (anymore, at least). I go out to dinner. I try to run a race or be outside. I try to learn something new, or travel to a different location. But I know this day is still going to be excruciatingly hard. And often the days leading up to the birthday are even harder. 

Sometimes I just disappear off the grid for a few days. Frequently, I try to ignore the darkness that I know is inevitably coming. Other times I just let the sadness envelop me and sit at home and cry. Mostly, though, I've learned to be honest with people. I find myself saying more and more to my close friends and family, "you know, my birthday is just a really hard day for me." They don't have to know why it's my dark day. They can just nod and move on. Knowing that the next year they will still ask me what I'm doing for my birthday. Because that milestone will come, whether I like it or not.

A few days after my birthday, I saw a former Business school classmate celebrating her 30th birthday. With a giant party. And a huge close-up photo of the stitches in the side of her head. And an announcement that, after eight years of beating her tumor, her brain tumor (just like Dave's) had morphed into the dreaded Glioblastoma (GBM 4 for short). She referred to her tumor as terminal and at that point, something changed inside my head. No, not really. I can't change my whole temperament that quickly. But I did have a bit of a reality check.

This lovely young lady is actually the true definition of a fighter. She will forever remind me of why we (I) need to celebrate life. And never give up. Regardless of her diagnosis, her words are always filled with hope and I love seeing her smiling face when we meet up in Golden Gate Park for the Brain Tumor 5K (almost every year). Next year, I will complete the race for her. But I know she will still be here to ring in yet another birthday, to complete yet another milestone. And she will once again remind me that it is not about feeling sorry for myself. It is about celebrating the gift I receive by being able to turn yet another year older.

#curegbm #greymatters #curebraincancer #braincancerawareness

http://www.abta.org/

matagato

I have a lot of stories from my years in the Peace Corps. I have a least a dozen stories that involve all sorts of shenanigans, from the campaign to get Eddy Urbina front teeth to the time my mom hopped on a random stranger's horse and rode away, bareback.

But no other story holds a candle to the one involving two large men, a small cat, my living room, and a Spanish book of yoga poses from 1972. But I'm getting ahead of myself.

I've gotten more and more into storytelling this past year. Having a blog will do that to you. And just as I'm getting into writing stories, the Northern California Returned Peace Corps Association (NorCal) starts up a storytelling series, the Story Jam. Over the past year, Story Jam has consisted of Returned Peace Corps Volunteers getting up on stage and telling their stories. I'd been meaning to attend a Story Jam for months. Because before I knew it, I was standing on stage telling my tale of lost love. Below is my story.

Or you can listen to the audio version of the story here: http://picosong.com/2ycF/
And the video version is available here: https://www.youtube.com/watch?v=_bPu6U7_QVY&list=PLHcV3zsz2X9w7cZJTFHj34FpY97j64Csa

In my home in Gualaco, Olancho, Honduras I had mice. They would pitter-patter every night on the side of my bed, trying to crawl into it with me. So I got a cat. I didn't have mice anymore. 

Instead, I had a best friend. This was a very special cat. "Mi Primer Mascota." My first pet. I named her Bella, bathed her, put a flea collar on her, brushed her fur, let her sleep in the bed with me, potty trained her, and even bought her Gati, special cat food only found in the capital of my department, over two hours away.

The kids loved playing with Bella

Everyone in the village knew my cat; my special gringa cat (pink and white striped "gringa" flea collar and all). I loved this cat with all my heart and soul. When you are the only person living in a small village without your family, you have two choices: you can either miss your family inconsolably. Or you can make your own family. Bella was my family. I named her after my Aunt. I would take pictures of Bella and send them to my mom. I had never had a pet before and Bella was 100% mine.

Meanwhile, I was a new Peace Corps volunteer, always looking for something to fill my time. Around the same time I left for my two plus years in Honduras, my best friend decided to quit her job and move to a yoga retreat in Hawaii. Despite my reluctance to accept yoga into my life at the time, she had sent me off with a deck of yoga cards. I couldn't think of a better project to occupy my time than translating the yoga cards into Spanish. Frequently people would see me around town, at the school using the copier machine, or at the internet cafe, translating the instructions into Spanish. It took up a lot of time.

My yoga deck of poses

One of the very best things about living in my village was the Sierra de Agalta National Park that surrounded us. A group of Gualacans (my people) were "guides" who knew the park like the back of their hands. They would lead me to the Caves of Susmay any time I wanted. They helped me climb La Picucha, the tallest mountain in our department. These guys had day jobs, but being guides was the thing they were most proud of. I spent countless days with these guys; they became my closest friends.

So it wasn't too surprising when I got a knock on my door at 9pm one night. I was almost in bed. But Moncho (real name Ramon) and Eddy were at my door and they were super excited; they had just found a book, in Spanish, of yoga from 1972. And they couldn't wait share this information with me. What the hell, I thought, yoga hasn't changed in a few thousands years, what's another 20? Their poses should be the same as mine.

Moncho asked me if he could show me what he'd been working on. I didn't see why not. It was late, but they were already here and they were so excited. So Moncho quickly swept my living room floor clean and started one of the most difficult poses in all of yoga; he would attempt to do a tripod, leading into a head stand. 

Here's the thing about Moncho Belis: Moncho is a great guy, heart of gold, but also a former alcoholic always one step away from falling back off the wagon. His years of drinking had begun to catch up with him and he was what Hondurans refer to as "panzon." He had a literal beer gut. This guy weighed at least 200 pounds.

Moncho & Eddy

So to watch Moncho attempt the headstand was nothing short of miraculous.  But, along he went: elbows on the ground, legs on his arms, legs heading straight up in the air, and then legs coming down faster than you could imagine. But that's when I saw it. I gasped in horror as Moncho sat up. I was the first person to see the blood that completely covered his back. Then I saw my cat. Bella then started running around in little circles, blood shooting out the side of her head. Finally she dropped down dead and I just took off running, screaming and crying. I woke up the entire town. "What's the crazy gringa going on about now?" they started asking each other.

Where I went wasn't all that much of a mystery. I went to the home of my then Honduran boyfriend. I banged on the door, screaming for him. He was the only other person in the town who could even fathom how much I loved this cat. I woke him up. I also woke up his entire family. I screamed, "Moncho la mato, Moncho la mato!" - "Moncho killed her". And that's when things went from bad to worse. See, my boyfriend's brother's name is also Moncho. So his mom and dad thought either a. someone had killed their son Moncho or b. their son Moncho had killed a girl. Either way, it was looking bad. Everyone was upset.

And then my boyfriend had to explain a completely foreign concept to his parents; Karen was inconsolably upset because Moncho Belis had just killed her cat. Relieved their own son Moncho was okay, they started to stare confusingly right at me. At that point they knew I was crazy; how could I get so upset about an animal? Animals were meant to be kept outside, literally at arm's length all the time. It's not like a family member was gone.

Once I had mostly calmed down, I knew I had to go back home, to confront the scene of the crime. I headed home. Moncho was gone, but Eddy was there waiting for me. The floor was mostly cleaned up, but it still looked like the scene of a very bloody crime. And it was beginning to smell like one.

Eddy told me that Moncho had gone home. That's when I realized what my running away had done; it had told Moncho that I couldn't look at him ever again. But that wasn't true.  It was a freak yoga accident that killed my beloved cat. It was absolutely an accident.

I knew I had to talk to Moncho right away, so I went right over to his house. He was so sad, I just couldn't be mad at him. He very apologetically told me, "Karen, I am a lover of all animals. I could and would never hurt your cat. My children can attest to this fact. I have never harmed another living creature in my life!" 

Remember I mentioned these guys all had day jobs? Well, Moncho was a fumigator. The emotional side of me knew it was just an accident; the logical side of me knew we'd have to some day revisit just what it meant to be a fumigator by profession.

Back at home we put Bella in a box. I apologized to everyone around me for my crazy outburst that night, but my period of mourning had already begun. I put a sign on the door. "Hubo un accidente, no hay clases hoy." There was an accident, there are no classes today. I wasn't about to start telling everyone what Moncho had done. 

But I lived in a small town; everyone already knew. By noon the next day, Moncho already had the nickname "Matagato." Cat-killer. The cat was out of the bag. Everyone knew Moncho Belis had killed my cat.

We ended up burying Bella in my backyard. Eventually I accepted what had happened to her. And what about me and Moncho? I really did forgive him and we ended up becoming great friends. Even if he is a matagato.

Watch out for the cat-killer!

charcot marie foot

"Symptoms, then are in reality nothing but the cry from suffering organs"
-Dr. Jean Martin Charcot

Ever since I can remember I've suffered from mid-sleep charlie horses. If you're not familiar with the term, I get cramps in my calves while I'm asleep. Yes, I said while I'm asleep. In complete and total pain is a very jarring way to wake up.

So you can imagine my surprise when, halfway through my very first marathon, both my calves started actively cramping. Calf and foot cramps, until that point, had been reserved for laying down and/or sleeping. But instead I found myself running (for over two hours) through the active cramping in my lower legs. When I finally finished the race, medics put ice bags on my calves. While that helped relieve the pain a bit, removing the ice resulted in two of the worst cramps of my life; charlie horses so painful I dropped to the ground, screaming and swearing uncontrollably and scaring the medics who had circled around me and my family. All I could think was, "I haven't had a calf cramp this bad since I was fifteen years old." And I probably hadn't.

Running a marathon (and smiling) while my legs are actively cramping

If you've never suffered from a calf cramp (or in my case, many many calf cramps), you are lucky. They are painful. I'm never sure when they'll start, I do not know how best to ease them, and I absolutely do not know how to prevent them.

I wasn't the only person in my household with this mysterious midnight pain. My brother also suffered from mid-sleep calf cramps (and was the one who first used the term "Charley horse" and taught me its meaning). Most of my memories of Dave's calf cramps were during his high school years. Despite being two and a half years younger than Dave, we would both suffer leg pain at the same time, often during the same night. While I would always choose to instantly grab my leg (or legs) and try to massage out the cramp, Dave chose another treatment; he'd try to stomp them out. Dave would suddenly jump out of bed and start stomping down on his leg. Once he was satisfied he'd gotten the cramp out, he'd fall right back onto his bed and into sleep. The number of times I woke up to the sound of Dave stomping his leg are too numerous to count. It was a typical occurrence in our home.

And clearly I still continue to get these cramps. What's interesting to me it that there is very little known about WHY I get searing pain in my calf muscles that wake me up. I have been told about any number of possible causes of my distress, but none of them make any sense. Everyone seems to offer up an unsolicited solutions to this problem. First up, lack of potassium. Sorry friends, but I am absolutely 100% not potassium deficient. It's not the culprit. Trust me; I have my potassium level checked every six months (an unrelated concern). More potassium will not eliminate my cramps; I could eat all the bananas in the world and not get better.

The suggestion that dehydration is to blame for my charlie horses is much more believable. I don't drink enough. I try, especially with all the running I do. But I am always thirsty, most especially in the middle of the night. So I drink a lot. And I pee a lot. And I drink a lot more. But I never feel hydrated.

During my post-marathon calf cramp fit, my mom offered up some life changing information; calf and foot cramping is a symptom of Charcot Marie Tooth disease. Charcot Marie Tooth (CMT) comprises a group of disorders passed down through families that affect the nerves outside the brain and spine; aka the peripheral nerves. I know, it's an odd name for a foot disease (actually it's foot and hand). But it's named after the three doctors (Charcot, Marie, and Tooth) who discovered it. Several members of my family suffer from CMTX, the x-linked form of the disease.

After the marathon I had truly reached my breaking point. My feet had been hurting so bad for so long I had to finally see a podiatrist. Four days later I had the official diagnosis; I have Charcot Marie Tooth. I wish I could say I'm not devastated. But I am. Why else would I have avoided the podiatrist for twenty years? Up until last week I had still hoped I'd hear, "new shoes will fix your chronic foot pain." But they won't. Foot pain is a part of me. Most of the people close to me know my feet hurt every single day. Some days I run with the pain. Other days I run through the pain. But most of the time, I run despite the pain.

Packing for a marathon includes lots of 2nd skin bandages

So what does this mean for a (now official) marathoner? Of course I had to ask my doctor about the running. Would I have to give it up? The short answer is no. With lots of orthotics. And maybe surgery. But first orthotics, lots and lots of orthotics. And new shoes. And stretches. And special exercises. And the frozen water bottle under the foot trick that I promise alleviates plantar fasciitis.

Many people prefer to keep their CMT on the down low. In their defense, the symptoms can become very dehabilitating, especially for men. But I'm putting it out there; I am a marathon runner with CMT. Because I want you to know. And to understand. If we're out walking together, I'd like you to slow down. And when we're out on a hike, the pain might become so unbearable for me we have to either stop for a while or immediately turn back. But the pain won't stop me. I will continue to go out and run. And maybe even hike once and a while. And maybe, just maybe, someday I'll run another marathon. After all, "few things in life match the thrill of a marathon." (Fred Lebow, runner and founder of the NYC Marathon). Mr. Lebow, I completely agree.

I'm already thinking about my next marathon...

commitment

"The miracle isn't that I finished. The miracle is that I had the courage to start."
-John Bingham

Some days I feel completely committed to my marathon training plan. Other days I feel I've committed a grave mistake. Only on race day will I know how it will all turn out. Because I've made a commitment; to run the Surf City Marathon on February 1, 2015. It'll be my first marathon. But it might also be my last.

I started running exactly seven years ago. Most people don't have a life changing story; a day when they made a conscious decision to commit to running. But I'm not most people. And I have a story. It all starts with a conversation with my very sick brother in late August 2007.

My big brother and me enjoying lunch at Hot Dougs, 2006

In the middle of a typical daily phone conversation, a nearly wheelchair-bound Dave blurted out "if I had your legs, I'd run." I responded with a barely audible "okay," figuring I'd just shrug the comment off. Instead, at that exact moment, my running career began. A runner was born. After a few initial runs (I'd never run over 5 miles in my entire life) I signed up for the first race of my life; a half-marathon. Then I committed to a running plan. And most importantly, I kept to it.

Six months later, Dave and I had one final chat. It was January 25, 2008 and I remember the evening perfectly. I didn't know it at the time, but that particular Friday night conversation would be our last. With my mom holding the phone to Dave's ear, he asked me how I did in my race. I told him I hadn't run it yet. It was coming up the following Sunday. I was nervous, but I was also prepared. We then went on to talk about other trivial things, like baking cupcakes and turkey sandwiches. Later that night, Dave went to sleep and never woke up. I spent the week grieving with my family. But I was still in half-marathon training mode and because it was winter in Chicago, I had to run a little every morning at a nearby indoor track. But I knew Dave would understand.

One week later, on February 3, 2008, I completed my first half-marathon. Then I sat down with friends and watched the Super Bowl. I don't remember anything about the game. I do remember being so proud of my accomplishment, despite my completely broken heart.

I've run too many races to count over the years. 

Including my first, the Kaiser San Francisco Half-Marathon

But those events didn't turn me off to running. On the contrary, I knew I'd continue to run. I knew I'd have many more 13.1 mile races. And I have. But what I never could have known at the time was that I would eventually commit to running a marathon. That wasn't even in my wheelhouse as any kind of possibility. It wasn't an idea I ever passed around, not to others, not even inside my own head.

Then one day I committed myself to running 26.2 miles. And I was going to do it in front of my friends, family, and a ton of total strangers. All that was left was to actually say the words out loud, find a training plan, and think of a good marathon that was 24 weeks away. Easier said than done. Until I found the Surf City Marathon on February 1.

Seven years into my running career, I have come full circle. On the exact date of my very first race, I'll run my most ambitious. It's been a long journey. Running has always been tough for me. My feet are covered in blisters. I've had to sneak out of the office numerous times to head out on a run before the sun went down. I've cancelled plans too many times to count, given up alcohol, and spent countless hours on amazon shopping for gels, compression socks, water bottles, athletic tape, running shorts, and more. 

But I'm committed to running this race. I'm moderately scared, a little bit obsessed, and probably totally crazy. But I'm also incredibly determined. And strong. I can't remember ever being this strong, both mentally and physically. For the past five months I've gotten in to the habit of going out, spending hours pushing myself through every kind of pain, and convincing myself to do it all over again in a few days. This marathon training plan has forced me to muster up every bit of patience, fortitude, courage and commitment I never knew I had.

I never set out to run a marathon on my race day anniversary. I never meant to put so much importance on a specific time period (the week leading up to the Super Bowl). It's just how this year turned out; the date when my marathon training plan completed. The time has come for me to lace up my shoes and step up to the starting line of an actual marathon. Which I will complete. Because I've already committed myself to seeing my friends and loving, supportive family on the other side of those 26.2 miles.

The Huntington Beach Surf City Marathon is sold out, but you can come cheer on the runners if you live nearby. www.runsurfcity.com

memory keeper

You don't take a photograph, you make it.
~ Ansel Adams

A year ago I bought a camera; my first DSLR. It also happened to be my first single lens reflex camera of any kind. I carefully inspected my dad's Canon SLR from 1978 (the A-1, Canon's a runaway best seller) before finally deciding which camera I should purchase for myself. Even though I can't convert his SLR over to digital, I can convert his lenses. But that's something I may do some day far into the future.

For now, I live in two worlds: the world of digital photography and the world of print photography. I have two different cameras to serve me in these parallel domains. I have two different media. Actually, I have three. I grew up with my father making slides. He even had a mount for his SLR. He'd set the camera up over the open reference book and shoot textbook photos for slides. This is how he gave presentations up until about two years ago. Then he switched to PowerPoint. I never thought I'd say this, but I miss the sound of the slide carriage advancing.

I was home vising my family two months ago when my Aunts came over to go through my grandmother's old boxes. My grandmother passed away 20 years ago, and my dad had stored all her possessions in our crawl space. All her remaining possessions fit into two storage boxes. It took us hours just to go through one box.

My grandmother is the student in the middle of the first row.

What did we find? Important documents, memorabilia, sentimental letters, and many photos. But mostly we found slides. 

We also found a lot of photos in terrible condition. But I couldn't just throw them away. I'll fix them up, I thought, as I put them in my keep pile. I planned to bring them back to San Francisco with me, scan them, and make them beautiful again. 

  

This is how far I've gotten fixing our old family photos. I don't know how to use Photoshop. I don't have a fancy computer. Honestly, I don't know what I'm doing. But I know I have to keep trying. Because what if it works? What if it turns out technology can not just preserve, but also save, old memories? These memories are so old, the people who actually lived them have long since passed. My grandfather passed away over 33 years ago, his parents long before him. I now have in my possession photos of his parents' parents, going back hundreds of years. 

My great-great-grandmother. Don't get on her bad side.

So what am I fixing the photos for, when all I have are faded photos and hundreds of negatives? How do I even know what I've got? Scanning negatives as a novice is not easy. I'm getting the hang of it, but there are a lot of photos go to through.

In the midst of discovering what is on these negatives, I know that I've got someone's memories. I'll keep going through the negatives until I've scanned them all and seen what's still there. Because somehow these are my memories now too, even if they occurred long before I was born. Unlike digital photos, there is information scrolled on the backside of the photos; names and dates and even phone numbers. I know who, when, and where I'm looking at. What better time is there to make these memories my own as well?

            

My great-grandmother        The backside of the photo

I'm going to have to score +1 for the real deal photos. And thank my grandmother for keeping them tucked safely away among her most cherished possessions. I can't say I treat any of my digital photos with the same care. I still cherish actual old family photos. So, dust off your photos and look at them. And just because they aren't in good condition, or were overexposed, don't throw them away. Because you have memories that are often worth holding on to. And ones worth discovering; those that you didn't even know existed until now.

More family photos found in the box, restored by yours truly

My Dad's family

Aunt Ferne's graduation

Aunt Robin

Dad's family on vacation